Grandparent Autism Network

a vital resource for autism...and each other!

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Family Resources

The Family Autism Network is a program established in 2009 to increase access to resources for families affected by autism. It is sponsored by the Grandparent Autism Network in collaboration with The Center for Autism and Neurodevelopmental Disorders and Help Me Grow, Orange County.

We invite you to submit events and resources to this website and to share a link to www.faninfo.org with others. Your suggestions and comments are welcome.

A Grandparent’s Guide to Autism

This Tool Kit is specially designed for grandparents of children who have been diagnosed with autism.

This Tool Kit will help you to:

  • Learn about autism and its impact on your family.
  • Discover ways to support your children who may be struggling with their child’s autism diagnosis.
  • Find out ways to develop the best relationship you can with your grandchild.
  • Feel supported and encouraged so you do not feel lonely or overwhelmed.

Thank you to the members of the community who reviewed this Tool Kit and shared resources for this project:

  • Connie Anderson, Ph.D., Community Scientific Liaison, Interactive Autism Network (IAN).
  • Shirley Craven, Ph.D., Autism Speaks Chicagoland Chapter, Fearless Grandparents Against Autism Support Group, Chicago, IL
  • Bonnie Gillman, Founder and Executive Director, Grandparent Autism Network, Irvine, CA
  • Nan Goldberg, Founder, Our Special Grandkids, St Louis, MO
  • Bob and Jan Kaufman, Founder, Our Special Grandkids, St Louis, MO
  • Ilene Litvag, Founder, Our Special Grandkids, St Louis, MO
  • Nancy Miltenberger, Volunteer Chair, Walk Now for Autism Speaks, Lehigh Valley, PA

Click HERE to download the Guide (PDF).

GAN’s Volunteer Care Notebook Project

GAN collaborates with the Regional Center of Orange County’s Comfort Connection in providing the Care Notebook Project for families that have children with all disabilities.  Volunteers work one-on-one, helping parents to organize medical, school, therapy, and other information into binders to enable them to be better prepared for emergencies, insurance claims, annual Independent Education Plan (IEP) meetings, doctors appointments, service provider evaluations, etc.

Give a Care Notebook:  A Gift that Keeps Giving!

Families that have special needs children are typically overwhelmed with school, medical and therapy reports that need to be easily accessible when when requested for Independent Education Planning sessions, progress evaluations and for filing insurance claims. Giving your family a Care Notebook, may be the best gift they will receive for years to come. It helps them to organize the huge amount of paperwork they have and relieves a lot of stress. It is easy to find the components at any office supply store and should cost approximately $25. Here’s how you can make one:

Care Notebook Contents

  • A plain 3-ring binder with 2 inch rings. To personalize the binder, select one with a clear pocket on the front where you can insert a picture of your grandchild.
  • A notebook 3-hole punch, a small stapler, colored small “post it” note pads, a highlighter pen and paper clips
  • A 3-hole vinyl business card holder
  • A vinyl pen/supply pocket holder with zipper
  • Notebook index dividers with 10 sections

Suggested Categories for Index Tabs

  • Emergency Information
  • Medical Records
  • Education Reports
  • Therapies
  • Insurance Claims
  • Local Service Agencies
  • Autism Resources
  • Activities
  • Child Care/Respite Help, If applicable
  • Extra Blank Tabs can be filled in by Parents

Assembling the Notebook

Place the 3 ring hole punch at the front of the notebook and add the additional vinyl pockets for supplies and business cards. Put the stapler, “post it” notes, pens, clips, etc. in the supply pocket.

Label the dividers with the appropriate categories and place them behind the vinyl pockets in the notebook.

Offer to Help Organize and File the Records

If possible, offer to help sort and file the paperwork in the notebook with the most recent reports on the top. Set aside, but do not discard duplicates, or any of the paperwork. Label them so that your children can decide what to do with the extra copies.

You may want to purchase additional binders. Some families have a binder for every year, but the current academic year is typically the main focus for schools, physicians and therapists to review. If you are mailing the Care Notebook, consider using a USPS flat rate box.

More Announcements

Gift Giving Tips and Gift Suggestions

Posted: December 2, 2024

Pre-Holiday Suggestions Inform family members, in advance, about how they can minimize anxiety or behavioral incidents. Enlist other children to be inclusive in pre-planned activities with your grandchild. Prepare your […]

Helpful Holiday Suggestions

Posted: November 28, 2024

Think Ahead and Establish New Traditions Plan how you can meet your family’s needs and set realistic expectations. Forgive yourself if the holiday is not “perfect,” and traditional. Modify celebrations […]

Holiday Tips

Posted: November 27, 2024

The holiday season is a joyful time of the year, but it also can be stressful for kids with autism spectrum disorders (ASD) and other neurodevelopmental disorders. Here are a […]

Upcoming Events

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Contact Us

Grandparent Autism Network
360 E. First Street #202
Tustin, CA 92780-3211
Tel: 714.573.1500
E: info@ganinfo.org

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About GAN

Our Mission: To promote awareness and understanding of autism and to enhance the resources essential to community responsiveness.

GAN is a registered 501(c)(3): Tax ID# 20-5230144

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